Wednesday, October 5, 2016

One Small Step for PWS 2016

I had the great honor of shooting the One Small Step for PWS event in Spartanburg for the 3rd time this year. This is such a special event because it is organized by one of my good friends with the purpose of raising money for Prader-Willi Syndrome (PWS) research. This year they raised $34,000 for PWS research! Gwyn’s daughter, Ellie, was born with this rare genetic disorder 4 years ago and she and her husband have worked tirelessly for the past 4 years to help raise money to find a cure for PWS so that Ellie and her friends can one day live life full. This year, Gwyn had a co-host, Blythe, whose son Peyton was diagnosed with PWS last year. He was at the 5K last year after just being released from NICU. It is so fun to shoot this event each year to be able to watch these precious PWS kids grow up. They are such special kids and I really hope a cure is found soon so they can LIVE LIFE FULL! To learn more about PWS and the research, you can visit the FPWR website.

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